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Peanut Butter and Jelly by Angi Shumate

4/1/2016

1 Comment

 
We go together like...

We go together like
Rama lama lama
Ka dingity dinga dong
Remembered forever as
Shoo-wop sha whadda whadda
Yippity boom de boom
Chang chang changity chang sha bop
That's the way it should be
Wha-ooo Yeah

We both happen to be very humble people. Yet, even we must admit that we make a perfect team.  People who meet us often assume we have known each other forever. The truth is that we only met about four years ago.
Ann and I met about a year after IDEA House was established. She was working for a local newspaper at the time and contacted me, through email, to do a story on a local event IDEA House was sponsoring.  I was so excited for the opportunity for people to learn about IDEA House and was honored to be interviewed by a journalist.

Ann sent me questions by email and we talked back and forth a few times online. When the article was published, I contacted her to thank her. I promised her a “big hug” if we were ever to meet in person. (We laugh about that to this day, as Ann is not exactly a fan of hugging!) I had no idea, at that time, that Ann has ASD.


Fast forward a few months to the first time Ann and I met in person. She came to IDEA House to do a photo shoot.  She was (and still is) amazing to watch when she has her camera in hand. She was all business, but friendly. She captured some terrific photos of the teachers and the students. I was in awe when I saw the prints she framed for me.

All was fine, until it came time for me to pay her for her photography. She had worked very hard and invested her time and money into the beautiful pictures. Yet, she was completely unconcerned with being paid for them. When I did finally convince her to take a check, I was left feeling a little guilty and fearful that it was not enough. I was also sad to see that Ann did not seem to be aware of her “value.”

The tendency for Ann to underestimate herself is now one I am very familiar with.  In fact, in was a huge factor in our friendship and working relationship in the early years.  There were many, many times Ann became upset with me for pushing her out of her comfort zone.  She called it pushing; I called it believing in her enough to accept her anger and respecting her enough not to say “I told you so,” when she was so successful at things she thought she “could not” do!

Over the years, our work relationship has evolved to the point that we make a perfect team.  We trust each other and work in perfect harmony to provide the very best for our students. Our friendship has become one of the most important factors in my life. There are times when I am weak and she is strong for me. There are times when she needs the support and I am honored to give it to her. There are times when she wishes she could see things through my neurotypical eyes, but there are far more occasions where I wish I could see the world through her uniquely autistic perspective.

We go together, like peanut butter and jelly, like cookies and milk, like hot cocoa and marshmallows.  One is “fine” on its own, but together we are extraordinary!
1 Comment

A Dynamic Duo

4/1/2016

1 Comment

 
Picture

Peanut Butter and Jelly

By Angi DiSpina Shumate
We go together like...


We go together like
Rama lama lama
Ka dingity dinga dong

Remembered forever as
Shoo-wop sha whadda whadda
Yippity boom de boom
Chang chang changity chang sha bop
That's the way it should be
Wha-ooo Yeah

We both happen to be very humble people. Yet, even we must admit that we make a perfect team.  People who meet us often assume we have known each other forever. The truth is that we only met about four years ago.

Ann and I met about a year after IDEA House was established. She was working for a local newspaper at the time and contacted me, through email, to do a story on a local event IDEA House was sponsoring.  I was so excited for the opportunity for people to learn about IDEA House and was honored to be interviewed by a journalist.

Ann sent me questions by email and we talked back and forth a few times online. When the article was published, I contacted her to thank her. I promised her a “big hug” if we were ever to meet in person. (We laugh about that to this day, as Ann is not exactly a fan of hugging!) I had no idea, at that time, that Ann has ASD.


Fast forward a few months to the first time Ann and I met in person. She came to IDEA House to do a photo shoot.  She was (and still is) amazing to watch when she has her camera in hand. She was all business, but friendly. She captured some terrific photos of the teachers and the students. I was in awe when I saw the prints she framed for me.

All was fine, until it came time for me to pay her for her photography. She had worked very hard and invested her time and money into the beautiful pictures. Yet, she was completely unconcerned with being paid for them. When I did finally convince her to take a check, I was left feeling a little guilty and fearful that it was not enough. I was also sad to see that Ann did not seem to be aware of her “value.”

The tendency for Ann to underestimate herself is now one I am very familiar with.  In fact, in was a huge factor in our friendship and working relationship in the early years.  There were many, many times Ann became upset with me for pushing her out of her comfort zone.  She called it pushing; I called it believing in her enough to accept her anger and respecting her enough not to say “I told you so,” when she was so successful at things she thought she “could not” do!

Over the years, our work relationship has evolved to the point that we make a perfect team.  We trust each other and work in perfect harmony to provide the very best for our students. Our friendship has become one of the most important factors in my life. There are times when I am weak and she is strong for me. There are times when she needs the support and I am honored to give it to her. There are times when she wishes she could see things through my neurotypical eyes, but there are far more occasions where I wish I could see the world through her uniquely autistic perspective.

We go together, like peanut butter and jelly, like cookies and milk, like hot cocoa and marshmallows.  One is “fine” on its own, but together we are extraordinary!




1 Comment

Why it may be Hard for someone with Autism to go into a new situation

2/19/2015

0 Comments

 

Written by our very own Assistant Director, Ann Kagarise in Autism Speaks. Here is the link to Why it may be hard for someone with Autism to go into a new situation. 

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Autism Speaks posts IDEA House blog post

1/28/2015

2 Comments

 
Assistant Director, Ann Kagarise, wrote a blog on the Eyes of Autism and Autism Speaks published it. See if you recognize the eyes in the picture. They are some of our very own students at IDEA House. Here is the link. Share and look into the eyes of Autism. 
2 Comments

Out of routine! Yikes!

2/18/2014

4 Comments

 
Picture
It's a snow day at IDEA House. Kids are home. They are out of routine. Yikes!!! 

We have had a lot of  that going around.  In all my years going to school, I never remember having this many snow days.

Being out of routine can bring about a lot of fear for a child with Autism. It's a fact, people on the spectrum, process information, differently. Factor in, noise, smells,confusion and being tired.  Now, you have someone on the spectrum, processing even less than they could totally alert and with routine in place.

Temple Grandin talks about connections in the brain. "Connections may work like dial-up rather than high speed internet connections."

I can remember Angi talking to the staff about a brain that is processing slower. She gave the visual of a computer that is working slower. The dreaded hour glass pops up and it spins and spins or that circle on the screen that lets you know your computer is doing something, but you are just not sure what it is. The worst thing you can do is keep clicking because, eventually, it will just stop working altogether. 

Many times, people on the spectrum half hear things. I always say, "I hear blah, blah, blah," The more someone talks to me or the faster they talk, I hear every fifth word and before I know it, I have no idea what they are saying. Sometimes, I can piece together words here and there,  nod and act like I kind of sort of know what they are saying. People on the spectrum are great at masking. (covering up/pretending we understand when we don't.) But, then you expect us to know exactly what you said and then possibly execute something we have no understanding of.

I know this all to well.  There is a term called, "clipping." This can happen to anyone, but it happens all the time to someone on the spectrum. Give an order. "Go to the cupboard and bring me a vegetable, potatoes, and oil."

Every time I was asked something of that nature, I would get to the cupboard and stare at it for about five minutes trying to figure out what I was supposed to get. I would yell, "what am I supposed to get?"

I really only hear the beginning of things or the end. I tune in and out. It's like a bad reception. My brain just does not process and retain. You can tell me to read pages, 12-30 and do these questions, but I probably only heard the words..."read blah blah blah." 

I had a teacher ask me once, "Why are you the only one not taking notes?" And because I was a very non-verbal person who did not really know how to answer. Of course my answer was, "I don't know." I would get in trouble for things that I did not even mean to do. I just did not understand. (I am much better at this, now. As long as I am not stressed or tired.) In fact, if I do take notes, I understand much better because I need more than just 'hearing.' 

BUT, in order for me to understand words, I cannot look at the person directly. Then I lose my hearing...

So...

My inability to SAY that I was confused caused fear.

All behaviors do happen for a reason. Fear is a HUGE motivator when it comes to meltdowns/tantrums. I'm not excusing all behaviors. I'm just simply saying, "Fear is often the motivator."  Panic can be the first feeling when something new is introduced or when out of routine. Not knowing what is going to happen, not understanding all the cues and slower processing can lead to some significant fear. 

Your environment can feel like a tornado and you have to make sense of it.

Meltdown.

There are ways we can calm before this happens. First, stop it before the processing shuts down and all you are getting is spinning.
Create environments that are safe. Allow the person with Autism to share reasons for confusions and frustrations, but not allowing them to be excuses at the same time for NOT doing what they need to do.

AHA! NOPE! I never allowed my fears, confusions to stop me from growing and moving forward!

Even the most nonverbal person can express how they feel. Find a way for them to sit with you and communicate.  They are trying to tell you. 

One last thing, people on the spectrum do process slower, but believe it or not, they are the, "masters of reading slight differences in someone's actions."

Talk to them. They are watching, but the slightest differences can be confusing. 

Explain and listen. 

Ann Kagarise
Assistant Director at IDEA House
and
someone on the spectrum


4 Comments

Welcome to IDEA House's Blog

2/2/2014

0 Comments

 
Picture
Temple Grandin is one of the most famous individuals on the Autism Spectrum. She has written several books, and actress Claire Danes played her in an Emmy Award winning performance. 

Temple is one of the biggest advocates for people on the spectrum. She is a great example of how successful someone on the spectrum can be. Grandin achieved considerable academic success. She earned a psychology degree, followed by a master's degree in animal science, and a doctoral degree in animal science from the University of Illinois at Urbana-Champaign. She then worked as a consultant to companies with large animal slaughterhouse operations, advising them on ways of improving the quality of life of their cattle.

Often times, we only hear the negative about Autism. IDEA House is a school that brings out the positive in our kids. We believe in the. In fact, they teach us each and every day and they bring us so much joy.

I am currently reading the book, How I See It, by Temple Grandin. I thought I would take these first installments of our blog, to share her insights.

Long friend of Temple Grandin, Dr, Ruth Sullivan, speaks of her friend so honorably. I wanted to share these words because I want to offer hope to parents that might feel that their child with Autism has a less than productive life.

Temple, is one of the hardest workers I have ever known. In my opinion, it is mainly that trait that has helped her become the successful engaging adult she is now, despite severe difficulties along the way. She is knowledgeable. She is willing to help parents as well as others with autism. She is insightful. And she is courageous..and not least, she is funny.


For many individuals with autism, it is difficult-to-impossible to understand and develop 'theory of mind,' that intangible mental process by which most of us intuitively notice and 'read' the nuances of social situations: how others are feeling, what they may be thinking, and the meaning behind their nonverbal actions. Temple's persistence in learning this, and her strong analytical skills while doing so, have helped significantly in improving her social thinking and social sense.


Temple's writings are a result of her keen detective-like analysis of human beings, her extensive personal thought, and the wisdom gained only through the personal experiences that make up Temple Grandin.


Temple takes time to listen--without preconceived ideas or judgment...she seeks solutions, from teaching strategies to the larger lifespan issues.

From the words of Temple, "I didn't become social overnight. There wasn't a point when some magic switch turned on in my brain and the social stuff made sense after that. I'm the person I am today because of all the experiences I've had and the opportunities those experiences offered me to learn, little by little. It wasn't easy; sometimes, it was really difficult. I've made a lot of mistakes, but I just kept going until I got it right. And, I'm still learning today! That's what I want other people on the spectrum to learn. You just can't give up. You have to keep trying." 

I am the assistant director at IDEA House and also have Autism. Temple's words are mine, each and every day. Don't give up. I have to keep trying. I see that in our kid's as well. They are some of the bravest, hardest working, caring, loving individuals I have ever met.


IDEA House Educational Services, Assistant Director Ann Kagarise







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